Tuesday, October 23, 2012

How Did This Happen?

For some time now I've been thinking about doing a blog on my experiences as an Alzheimer's caregiver. I kept putting it off wondering, "What do I have to offer when there are other sites, such as my favorite, The Alzheimer's Reading Room?"  (That site has been a wealth of information and I highly recommend it.)

As one of nearly 15 million unpaid care givers in America alone, we need to read others experiences - it helps to not feel so solitary or so crazy when the going gets tough.  

So how did this happen? How did this blog that's been on my 'To Do' list for ages get born today? It wasn't intentional. I didn't sit down at the computer this evening to write a blog. I was in fact surveying my professional one (www.susan-tereba.blogspot.com) and noticed a button titled 'New Blog'. I clicked it to check it out and that click led to other clicks and here we are.

It's kind of like the end of denial that your beloved has Alzheimer's. You just wake up one morning and admit it after months or years of struggling against this horrible disease. You sort of merge with the idea of it. It becomes the new normal. 

My husband, Bob, first stated showing signs of the disease, so prevalent in his family, twelve years ago when I almost died of a strangulated intestine. That trauma changed our lives forever.  While I healed from the emergency surgery done in Bali (that's another story),  Bob did not. Suddenly my protector, my white knight, my business partner, my soul mate, my best friend changed in a way that all our friends knew something was very wrong. The competent Bob they'd always known crumpled before their eyes, unable to even dial a phone.

That something was first diagnosed as Mild Cognitive Impairment or MCI. A couple of years later we got the official AD diagnosis.  

I hope that the stories I'll be writing of how I've coped as a caregiver while keeping our business alive here in Bali, where we've lived the last twenty-two years, will be helpful to other care givers.

May we continue inspiring each other,


Bob, Susan, and Python in Bali 2011.


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I welcome your comments and hope you have found some inspiration in these stories. If the comments section isn't working you can email me at: alzworld2@gmail.com