When my friend Alan and I went to see Bob yesterday he was
almost in the same state as he was in the clinic last Monday. He was in a deep
semi conscious state. It felt like dehydration again so I put a little
chocolate milk on his lips. He licked it off. I did more, he licked. Then I put
about a quarter of a straw full right into his mouth and he swallowed. After a
few more squirts I got him to actually suck the straw until he had finished it.
This boxed drink was handy because I could squeeze it to
get the milk to rise in the straw and into his mouth until he took over
sucking. The trick was to get it started
for him because sometimes he doesn’t understand the instruction, “Suck, Bob.”
We also prepared bottles of half 100% juice, half water,
and a sachet of electrolytes which he drank over the course of the day
consuming at least 1.5 liters of liquid.
We’ve taken him off black tea because the caffeine is dehydrating.
I wrote to our doctor in Bangkok who always takes the time to e-mail
me back with advice. I told him the
situation with Bob and he answered:
“Unfortunately,
dehydration can be quite common since he has reached the point in his disease
where he does not know what to do with the sensation of thirst.
I agree that offering water hourly during the day is a good idea. If he is unwilling to drink plain water, sometimes it helps to spritz it up with fruit juice for flavor.
I agree that offering water hourly during the day is a good idea. If he is unwilling to drink plain water, sometimes it helps to spritz it up with fruit juice for flavor.
Wayan and Bob |
It is
also a good idea to have him eat things with lots of fluids in them to prevent
dehydration. For example, watermelon and soup (as long it is the clear type
soup with not too much salt).
The nutritional supplement, like Ensure, does help. For putting on weight, eggs are actually pretty good since it gives muscle mass rather than fat. I have patients in whom we are trying to help gain weight and we use 2 eggs per meal (6 per day).
He may be experiencing the same problem with food as he is with water, in that if encouraged to eat, he will, but he has forgotten what to do with the feeling of hunger. This may sound bad, but we usually treat people like this the same way we treat a 3 year old we are trying to get to eat more. It helps to find out what they like and go with it until they change their taste. Just like a 3 year old may only want noodles every day for 2 weeks, and then suddenly change over to something else.”
The nutritional supplement, like Ensure, does help. For putting on weight, eggs are actually pretty good since it gives muscle mass rather than fat. I have patients in whom we are trying to help gain weight and we use 2 eggs per meal (6 per day).
He may be experiencing the same problem with food as he is with water, in that if encouraged to eat, he will, but he has forgotten what to do with the feeling of hunger. This may sound bad, but we usually treat people like this the same way we treat a 3 year old we are trying to get to eat more. It helps to find out what they like and go with it until they change their taste. Just like a 3 year old may only want noodles every day for 2 weeks, and then suddenly change over to something else.”
The results yesterday were so clear that Bob was
dehydrated. He went from being in a deep sleep like state to talking and
sitting up to gobbling up his lunch.
Just before we left, Alan was talking with Bob and pointed
to me and said, "I think she kinda
likes you". Bob said something
incoherent. Then Alan said, "She's
kinda funny looking though". Again
Bob mumbled something incoherent.
"And I think she's a little crazy," Alan joked. Bob looked him
straight in the eye and said in a clear and strong voice, "They all
are!"
Yep! Bob’s still in there!
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