I gave a talk on being a caregiver at
TEDx Ubud on May 28, 2016 . The talk is now on You Tube and you can see it
here:
My
caregiver days for my husband have been over for two years but the effects of
those fourteen years of caring for him will be with me forever. Caregiving is a
lonely business with families and friends often easing into the background,
leaving the primary caregiver on their own. People with Alzheimer’s have a
completely different operating system than we do. Family and friends may be
uncomfortable being with a person living in Alz World, it may trigger their own
fears about their later years, or they may feel that it’s too big a
responsibility to step in and give respite to the primary caregiver.
Dealing
with dementia on a day to day basis is exhausting no matter how loving you are
to the person with it. Encourage the people around you to come, even for an
hour or two. Encourage them to enter Alz World to communicate with the person
and have fun with it. Tell them to redirect the person’s attention if they stray
into uncomfortable territory. You need the break for your very own health and
sanity.
Try to start this support system early on in the disease to ease your friends and family into Alz World. That way it won't seem so foreign.
If you know a caregiver, volunteer to give them a break. It's one of the best gifts you can give.
I'm 57 years old and female. I was diagnosed a couple of years ago with COPD and I was beyond scared! My lung function test indicated 49% capacity. After having had flu a year ago, the shortness of breath, coughing and chest pains continued even after being treated with antibiotics. I've been smoking two packs a day for 36 years. Being born without a sternum caused my ribs to be curled in just one inch away from my spine, resulting to underdeveloped lungs. At age 34 I had surgery and it was fixed. Unfortunately my smoking just caused more damage to my already under developed lungs. The problem was having is that I enjoy smoking and don't want to give up! Have tried twice before and nearly went crazy and don't want to go through that again. I saw the fear in my husband and children's eyes when I told them about my condition then they start to find solution on their own to help my condition.I am an 57 now who was diagnose COPD emphysema which I know was from my years of smoking. I started smoking in school when smoking was socially acceptable. I remember when smoking was permitted in hospitals. It was not known then how dangerous cigarettes were for us, and it seemed everybody smoked but i was able to get rid of my COPD lung condition through the help of Dr Akhigbe total cure herbal medicine. my husband saw his testimony on the internet he used his powerful medicine to cured different diseases. we contacted his email [drrealakhigbe@gmail.com} He has the right herbal formula to help you get rid and repair any lung conditions and others diseases, will cure you totally and permanently with his natural organic herbs,We received the medicine through courier delivery service. I wish anybody who starts smoking at a young age would realize what will eventually happen to their bodies if they continue that vile habit throughout their life.
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